Who We Are

Our Mission is to seek new treatments and cures for
Short Bowel Syndrome and Intestinal Failure.

Our
Vision is an SBS / IF community that has the
resources and education it needs to make informed choices about their care and to promote new research.
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We focus on the following areas:

EDUCATION
To educate the SBS/IF community about risks and rewards of current SBS treatment options.

 AWARENESS

To build and enhance our SBS / IF community and its connectivity.

RESEARCH PROGRESS
To seek support for new treatments and cures for SBS / IF.


SBS Cure Project is a 501(c)3 nonprofit created to fund ways to improve the lives and available medical options for those with Short Bowel Syndrome and Intestinal Failure. Since many diagnoses result in an SBS/IF outcome (multiple diseases, trauma, accident, radiation, etc,…), the scope of new treatments and cures is broad and filled with possibilities. The traditional options available for Short Bowel Syndrome and Intestinal Failure are TPN (Total Parenteral Nutrition) and cadaver transplant, both of which can be problematic. Newer pharmaceutical options are slowly coming to market, but the varied underlying causes can rule out entire patient groups. We seek to fund research in areas of promise such as small pharmaceutical start-ups focusing on SBS/IF treatments for various diagnoses; Fund newer iterations of current research like stem cells, 3D printing, and Distraction Enterogenesis; Help consumers get to specialized care centers, as well as to educational conferences; and to be an education and outreach resource for the community.


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Kathryn Bundy, Founder & Executive Director

Kathryn (Kat) Bundy, Executive Director/Founder of the SBS Cure Project, has had a varied career on the path to patient advocacy. As an SBS/IF patient herself, and on TPN for 33 years, Kat has experienced the ups and downs of rare disease and medical treatment. A staunch advocate for patients’ rights and a strong patient voice, Kat has lobbied Capitol Hill for rare disease research funding, The Orphan Drug Act, and others. Her focus now is to fund research into SBS/IF while educating the community about available treatments. Kat is a classically trained actor from New York, and has also worked as a graphic designer for film and TV, among other strange and wonderful jobs. Kat attended colgate university for computer science/math, but switched to fine arts and french, although her love of all things digital continues…

 


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Gibran Maciel, President & CEO

Gibran Maciel is a seasoned California politics and communications professionals specializing in strategic communications, coalition building, identifying communities of interest and bringing them together. It is that same experience that Gibran will build on to serve the Short Bowel Syndrome and Intestinal Failure community. By thinking about SBS Cure Project as a “campaign” we are better able to reach out and activate our community of SBS / IF patients, consumers, advocates and supporters. Gibran is passionate about uplifting communities in need and service in the non-profit sector.

Prior Roles: Communications Director, Assemblymember Jimmy Gomez. Special Assistant, California Public Utilities Commission President Michael Picker, Special Assistant, Assembly Speaker Toni G. Atkins.

  • Over 8 years of experience in California’s legislature, state government and trade associations.

  • Demonstrated success in creating and executing communications and issue-based campaigns, coalition building, identifying communities of interest and bringing them together.


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Seeking Treasurer!

SBS Cure Project is seeking a treasurer to join our board and help with the management of SBSCP finances, book-keeping, state and federal tax filings, etc. The treasurer will also be a voting member of the board and will be able to help “steer” the direction of our work as we continue our mission to seek new cures for SBS/ IF and educating the community. The ideal candidate will be a SBS / IF patient or ally with experience in book-keeping or related areas.

Interested candidates should email: info@sbscure.org.